Thank you for including The Visitor. LBD has been raised as a likely dx for my mum. Its fascinating to me that social & healthcare structures can care about her wellbeing or mine but not both at the same time. One of us, apparently, has to be sacrificed for the other. Each system is only “allowed” one focus of care. I wonder who this serves.
It's a tough diagnosis to get, as much as having a label can bring some relief. You make such a smart point about the way our segmented systems work. I imagine a lot of our idealized nostalgic notions about how things worked better in the past comes from a longing for holistic systems. Today's experts aren't qualified or allowed to support both the patient and the caregiver. Instead, all too often they end up counter acting each other. So many of our systems just happened, one decision at a time, often on a whim or because of some long-gone constraints. It's incredibly frustrating, as much as realizing how arbitrary things are gives me hope that these systems can be changed.
Its funny how your point about evolution - or perhaps I mean accretion? - becomes so clear once you’re in those systems. Especially when it feels lije you’re under the wheels.
Thank you for including The Visitor. LBD has been raised as a likely dx for my mum. Its fascinating to me that social & healthcare structures can care about her wellbeing or mine but not both at the same time. One of us, apparently, has to be sacrificed for the other. Each system is only “allowed” one focus of care. I wonder who this serves.
It's a tough diagnosis to get, as much as having a label can bring some relief. You make such a smart point about the way our segmented systems work. I imagine a lot of our idealized nostalgic notions about how things worked better in the past comes from a longing for holistic systems. Today's experts aren't qualified or allowed to support both the patient and the caregiver. Instead, all too often they end up counter acting each other. So many of our systems just happened, one decision at a time, often on a whim or because of some long-gone constraints. It's incredibly frustrating, as much as realizing how arbitrary things are gives me hope that these systems can be changed.
Its funny how your point about evolution - or perhaps I mean accretion? - becomes so clear once you’re in those systems. Especially when it feels lije you’re under the wheels.